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Press Release
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April 18, 2022
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6 min read
En la Fundación de la Fibrosis Quística, nos comprometemos con la igualdad, la justicia racial, la diversidad y la inclusión como principios básicos que guían nuestros esfuerzos para brindar a toda persona con fibrosis quística (FQ) la oportunidad de llevar una vida larga y plena.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.