I struggled emotionally after learning that after negative carrier and newborn screens, my son had cystic fibrosis. I’m now advocating for people with rare mutations.
Site Search
Showing 1 - 6 of 6 results
Cambrey White
|
6 min read
It took an agonizing five months to learn whether my second son had cystic fibrosis. After two inconclusive sweat tests, a DNA test finally gave us the answer.
Dana Kibbel
|
8 min read
There are many ways you can support a family with a child or children with cystic fibrosis. Educating yourself about the disease and its treatments and offering to help without being asked are some of the best ways you can show you care.
Kelsey Scott
|
7 min read
Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.
News
|
Nov. 16, 2022
|
3 min read
Addressing variability in newborn screening can prevent missed diagnoses and delays in early care intervention.
News
|
Sept. 29, 2022
|
3 min read
I had no idea what cystic fibrosis was — or that I had it — until six months of pancreatitis led to a diagnosis.
Spencer Barber
|
5 min read