A high-calorie, nutrient-dense diet and exercise leads to healthy, strong bones for people with cystic fibrosis. Good nutrition also means taking vitamin and mineral supplements and sometimes medication.
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Just as the lungs produce thick, sticky mucus, the pancreas also makes thick mucus that blocks the release of enzymes needed for digestion. Most people with cystic fibrosis need to take enzymes before they eat.
Phthalates (pronounced “THA-lates”) are a group of chemicals used in many products, including drugs, medical supplies, toys, vinyl flooring, wall covering, detergents, lubricating oils, food packaging, cosmetics, and personal care products like soaps and shampoos.
Taking the right medications not only helps you meet your nutrition goals but also it prevents you from harming your health.
Managing your daily life so that you don't miss your treatments while also taking in enough calories to maintain a healthy weight is not easy. You're not expected to do it alone. Your cystic fibrosis care team is there to help you.
Tube feeding can be a great way to get the calories and nutrients that you or your child with cystic fibrosis need to gain and maintain a healthy weight. Far from a “last resort,” tube feeds can also relieve the stress of mealtime.
You will work with your cystic fibrosis care team to make a schedule that works best for you, whether that is between meals, all day or overnight.
To help ensure your child's social, emotional, medical, and educational needs are being met at school, you may consider requesting an evaluation for an individualized education program or a 504 plan through your child's school.
When there is more than one person with CF in your school, it is essential that they be kept a minimum of 6 feet (2 meters) apart from each other. Germs can spread as far as 6 feet through droplets released in the air when people cough or sneeze.
As children with cystic fibrosis transition toward greater independence at school and at home, they will also take greater responsibility in managing their disease.