The initial sadness we felt when learning that our son had cystic fibrosis quickly gave way to our determination -- as a family -- to react in a productive way.
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With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.
After our son Sam died in 1990, I felt a kinship to everyone impacted by cystic fibrosis. I knew they could understand what we'd been through: parenting and losing a very special human being we loved so deeply.
Kids can be picky eaters. When you have a child with CF and the nutritional stakes are higher, you may need some creativity to keep them interested.
I never realized how important it was to share my family's story of cystic fibrosis until I started participating in Teen Advocacy Day. This experience helped me find my voice.
It wasn't until I got some perspective that I realized that when I rebelled against my cystic fibrosis treatment plan, I was rebelling against myself.
For the longest time, I did all I could to deny that I had cystic fibrosis. Eventually I came to own my CF.
Having a spouse with cystic fibrosis can leave you focusing too much on their health and not your own. My weight loss journey taught me that even if it's not about him, it's not about me, either. It's about us.
Reflecting the continued momentum we're making in the fight against cystic fibrosis, the latest Patient Registry data show steady gains in survival for people with CF. With this good news comes a lot of excitement, along with some questions.
I went through a roller coaster of emotions after my child was diagnosed with cystic fibrosis. One of the most important lessons I learned is that I had to take care of myself first so I could take care of my daughter.