If not for my mother and my wife, I would not have survived this arduous, 50-year journey with cystic fibrosis. But now I have another ally: Trikafta® is having a substantial impact on my health.
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It took me 38 years to find a fitness program to stick to. And since I started TrikaftaTM, I am even running for the first time in my life -- and almost enjoying it!
Many people with cystic fibrosis are counting on cystic fibrosis transmembrane conductance regulator modulators to improve their overall health. I'm learning that they have effects I hadn't counted on.
In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.
As a high school nurse, I've worked hard over the last few years to help my three students with CF navigate school safely. A welcome but unexpected change to my plans was helping one of my students get her very own service dog, Rosie.
I have seen tremendous health gains since starting Trikafta. But control of my cystic fibrosis-related diabetes has been elusive.
The pandemic made me a homeschool teacher last spring. After deciding we would continue homeschooling our kids this fall, we agreed we needed to shake things up. Gone was the cluttered kitchen table where we were doing lessons before, and in its place is a “classroom” we made in our garage.
As schools start to reopen, parents, students, and households aim to make the best decisions for those living with cystic fibrosis. Here's your guide to hearing the risks, benefits, and key factors to consider for in-person and distance learning.
Starting college was a big change for me. Now that I have just graduated, I want to share some tips that helped me be successful with teens with CF who may soon be starting college.