Finding out I had a terminal illness my junior year of high school was a life change I was not prepared for. And as my life and relationships change, I'm learning that the journey to acceptance never ends.
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Living in Pakistan, I didn't know I had CF until I was 18 years old. After absorbing a big emotional blow, I started to fight back.
After years of being in a deep depression, one little revelation from my therapist made all the difference in how I faced the traumas in my life.
After years of health problems and a move to the U.S., I finally was diagnosed with cystic fibrosis at age 27. Once I knew about this disease, it was important to me that my family and friends -- and even my old doctor -- in the Azores know about it too.
When I was diagnosed with cystic fibrosis at age 40, I was in denial at first. Then, I compartmentalized my CF, relegating it to a small part of my life. Now I have embraced my diagnosis, and I have become a CF advocate, fundraiser, and blogger.
The recent birth of my son brought me news that I never expected -- a diagnosis of cystic fibrosis.
I can't say I was happy to get this diagnosis, but I was definitely relieved to have answers. At least I knew who I was in the ring with.
In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.
As a high school nurse, I've worked hard over the last few years to help my three students with CF navigate school safely. A welcome but unexpected change to my plans was helping one of my students get her very own service dog, Rosie.
The pandemic made me a homeschool teacher last spring. After deciding we would continue homeschooling our kids this fall, we agreed we needed to shake things up. Gone was the cluttered kitchen table where we were doing lessons before, and in its place is a “classroom” we made in our garage.