Foundation and Legislative Supporters Pushed for Bill
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Bill Would Remove Financial Penalties for Participating in Research Studies
The only thing that is certain in my life is the uncertainty of my teenage daughter's next hospital stay. Despite this, she has somehow managed to supervise her own academic life from a hospital room.
Looking back at my freshman year, I realize that putting college before my CF wasn't the first thing I had all wrong.
Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases