One of the questions that we ask our representatives during the Foundation's signature advocacy event, March on the Hill, is to join the Congressional CF Caucus. Here is my story of what happened when I (accidently) asked a senator to join that caucus.
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A few weeks ago, while contemplating the trip I was about to take to Washington D.C. to join my fellow advocates for the Cystic Fibrosis Foundation's tenth annual March on the Hill, I challenged myself to "think big." So I sat down in front of the computer and wrote a letter to the President of the United States.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
As we reflect on 2016, we are so thankful to our friends around the country, dedicated researchers, care center professionals, volunteers and, most of all, those of you living with CF.
Lukas Daskas found something in the Cystic Fibrosis Foundation's Teen Advocacy Day that he had been searching for his whole life: a sense of community and understanding by others who know what it's like watching a loved one battle cystic fibrosis.
Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he's only 18.
As the mother of a child with CF and volunteer for the CF Foundation, I know first-hand the extraordinary things that Dr. Bob Beall has done for our community, and I am grateful for the legacy of hope that he leaves behind.
Creative use of technology can help build a more connected community. Read on to learn about the Cystic Fibrosis Foundation's innovative efforts to include more people with cystic fibrosis.
Read how Blake Leyers helps put a face on this disease by sharing her brother's story.
I can say without hesitation that the cystic fibrosis online community is unlike any I've ever seen. In my new role, I am excited to see the very engaged CF community in action. I can't wait to communicate with everyone, especially those in the online community, and see where you'll take us next.