Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence
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New Patient Data Posted Online Shows Improvements Across Care Center Network
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Living with a chronic disease, such as cystic fibrosis, can be emotionally challenging. Although moments of sadness and anxiety due to the uncertainty of your health may come and go, depression and persistent anxiety should be treated as part of your overall health and emotional wellness.
Managing cystic fibrosis can feel overwhelming at times — but we’re here to help. Learn how to navigate life with CF.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.