Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence
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Press Release
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Oct. 21, 2008
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3 min read
Press Release
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March 18, 2008
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3 min read
New Patient Data Posted Online Shows Improvements Across Care Center Network
Press Release
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Jan. 28, 2008
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4 min read
Treatment plans help people with cystic fibrosis maintain their health so they can live longer, more fulfilling lives. Although every treatment plan is unique, comprehensive CF treatment plans usually include quarterly visits to a CF care center and the following components: airway clearance techniques; oral, inhaled and nebulized medications; nutrition therapies; and a fitness plan.
Airway clearance techniques (ACTs) loosen thick, sticky mucus so it can be cleared from your lungs by coughing or huffing. Clearing the airways may help decrease lung infections and improve lung function.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.