Losing my brother when I was just a teenager left me feeling isolated in my grief. There was no internet or social media in the 1980s to connect with other people with CF. Therapy and time eventually allowed me to cope with his loss, open up to family and friends, and invite them to share in my memories.
Site Search
Showing 21 - 30 of 37 results
Melissa Shiffman
|
7 min read
Press Release
|
Jan. 21, 2015
|
2 min read
Press Release
|
Jan. 30, 2015
|
3 min read
Press Release
|
July 16, 2015
|
2 min read
Senate Caucus will work with House Caucus to raise awareness, advance policies and support research
Press Release
|
April 19, 2016
|
5 min read
Bill Would Remove Barrier to Clinical Research for Rare Diseases by Ensuring that Clinical Trial Participants Don't Lose Critical Health Benefits
Press Release
|
Sept. 18, 2015
|
3 min read
Press Release
|
July 15, 2008
|
2 min read
Although many of us were never able to meet Claire Wineland in person as fellow CF patients, her legacy and approach to the disease continue to have a major impact on the CF community.
Katherine Russell-Sponaugle
|
5 min read
Cystic fibrosis took the lives of my sister and brother. I use every opportunity to share their stories and help keep their memories alive.
April Zimmerman
|
5 min read
Legislation Would Remove Financial Penalties for Participating in Research Studies
Press Release
|
Sept. 28, 2009
|
2 min read