A group of nonpartisan patient and consumer organizations issued a statement after passage of the Tax Cuts and Jobs Act.
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Press Release
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Dec. 20, 2017
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2 min read
Treatment plans help people with cystic fibrosis maintain their health so they can live longer, more fulfilling lives. Although every treatment plan is unique, comprehensive CF treatment plans usually include quarterly visits to a CF care center and the following components: airway clearance techniques; oral, inhaled and nebulized medications; nutrition therapies; and a fitness plan.
Airway clearance techniques (ACTs) loosen thick, sticky mucus so it can be cleared from your lungs by coughing or huffing. Clearing the airways may help decrease lung infections and improve lung function.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as are nebulizers and vests. Learning more about insurance can help make sure you can get the care you need.
Twelve patient/consumer groups urge senate to reject the bill.
Press Release
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June 26, 2017
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2 min read
Responding to the U.S. Department of Health and Human Services final rule on short-term, limited-duration insurance plans, the Cystic Fibrosis Foundation joined 26 other nonpartisan patient and consumer groups to voice concern that these plans will split the market and jeopardize access to affordable, adequate health care for people living with pre-existing conditions.
Press Release
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Aug. 2, 2018
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3 min read