You may or may not have seen the video of the woman taking her first breath as her breathing tube is removed following her lung transplant. That was my fiancée, Jennifer.
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After I received a letter from my transplant donor's mom, I hurried to respond, anxious to learn more about the woman who gave me new lungs and her family.
Shortly after receiving a double-lung transplant, I was fortunate enough to meet my donor's family. It brought us peace, healing, and connection.
Facing the challenges of cystic fibrosis is something no one should have to do alone. Fortunately, I have been able to rely on my support system to give me strength when I wasn't sure if I'd be able to continue the fight.
I’ve learned over the years to speak up and ask questions when it comes to my cystic fibrosis care.
Not many people can say they had a second chance at life. But, thanks to organ donation, I can. And I'm not just alive -- I'm living. My feet hit the floor every morning because there is no better motivation than clear purpose, which for me is motherhood.
Not having a roadmap for life wasn't a problem when I thought I wouldn't be around long enough to take the trip. A double lung-transplant has me rethinking this belief.
I dreaded transitioning from my pediatric care center to my adult care center. I was stubborn and knew that I did not want to go. I thought I knew best, that is, until one phone call changed my entire perspective.
After my lung transplant, I discovered I couldn't keep eating the typical high-calorie CF diet. By learning to practice mindful eating, I have found a new way to enjoy my food.
Living with cystic fibrosis means you have to handle complicated logistics, like filling prescriptions, working with insurance companies, and scheduling appointments. Taking over these responsibilities from my mom was an adjustment, but I came up with a few tips to make the process much easier for me.