No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
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Sending our son to school was scary, but we have a plan to keep him healthy.
When your life is already jam-packed with nebulizing medications, why would you add one more?
Before you can walk a mile in a person with CF's shoes, you have to put on a nebulizer.
At first, it was easy to get my son to do his cystic fibrosis treatments. But as he got older, he started to hide his medications, rather than take them. I finally learned how to get him to see the importance of taking his medications.
Having already been underwhelmed by Orkambi® and Symdeko®, I was skeptical about whether the triple-combination therapy would live up to the hype. However, after a month of being on Trikafta®, I feel improvements in my lung function, weight, and overall energy.
In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.
As schools start to reopen, parents, students, and households aim to make the best decisions for those living with cystic fibrosis. Here's your guide to hearing the risks, benefits, and key factors to consider for in-person and distance learning.
The imagination can run wild thinking of all the possible scenarios that could happen after trying the new triple-combination modulator, Trikafta™. Managing expectations -- while allowing yourself to hope -- is how I choose to approach my wait for the new drug.
As a CF pharmacist, I've received many questions about complementary and alternative medications and supplements over the years. Although I am admittedly not the first person to “jump at the idea,” I always make sure to stay informed about available products and listen to my patients without judgement so that we can partner together to develop the best treatment plans for them.