La fibrosis quística (FQ) es una enfermedad genética. Escuche las presentaciones de los expertos, el Doctor Fadel Ruiz, director del centro de fibrosis quística de Baylor y el Doctor Carlos Milla, director del centro de fibrosis quística de Stanford y sus respuestas a las principales preguntas de la comunidad sobre terapias genéticas para la FQ. El panel fue moderado por Sylvia Mazuera, madre de dos hijos, el menor de los cuales tiene FQ.
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More women with cystic fibrosis are reaching reproductive age, becoming pregnant, and delivering babies. Nutrition before and during pregnancy is essential for all women.
The thick, sticky
Individuals with cystic fibrosis and other chronic diseases often have a “hidden” loss of muscle mass, despite normal body weight and BMI. Increasing your protein intake and exercising regularly are easy ways to preserve muscle mass.
Starting solid foods is very important for the development and health of babies with cystic fibrosis.
At this age, you will want to start serving high-calorie finger foods and gradually boost calories with safe solid foods. It is important to create a routine and set time limits at mealtime.
Good eating habits last a lifetime. Remember to compliment and reward good eating habits. If mealtime battles drag on and affect your child's growth, consider tube feeding to ensure good nutrition.
Children with cystic fibrosis ages 3 to 7 learn by watching their family, parents, teachers, and friends. They like to be independent but need limits and structure. Have planned meals and snacks.
People with cystic fibrosis are at risk for two common bone diseases: osteoporosis (ostea-o-pour-o-sis) and osteopenia (ostea-o-pea-knee-a).