Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she's been able to overcome her fear of the inevitable: a feeding tube.
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March on the Hill brings a mix of new and familiar faces to Capitol Hill every year. The connections and stories that our advocates share with their elected officials are making lasting impressions that impact the entire CF community. And as this event has grown, so too has the cystic fibrosis story.
How do you define passion? For me, it's simple. It's the things that I enjoy, the things that I love and the things that I want to do continuously. However, trying to figure out what those things are is not so simple.
Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”
A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
In a culture flooded with advertisements about the perfect body, secret weight-loss tricks and fad diets, our cultural ideals of weight are often skewed to an image that is far from healthy.
Dietitian Gretchen Garlow demystifies the hottest food trends for people with cystic fibrosis and invites questions for future blog posts.
My desire to help others with CF learn how to eat well led me to make a hard personal decision -- one that continues to pay off.
Sr. Vice President for Policy and Community Affairs Mary Dwight reflects on the passage of the Ensuring Access to Clinical Trials Act (EACT) and what it means for the community.
Holiday foods may be wonderful to eat, but they also can be very high in fat. Making sure that you take enough enzymes with these special meals could help you avoid unnecessary issues during a time reserved for loved ones.