Although keeping up with daily cystic fibrosis treatments can be frustrating, it is key for staying healthy and living the life you want to live. So, Superhero Big Air Jerry was born to help kids with CF feel more empowered in their daily CF care and overcome challenges through positivity.
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As the single parent of a child with cystic fibrosis, life is a difficult balancing act. That's why, sometimes, I feel a bit like Jean-Claude Van Damme.
Managing your blood sugar if you have cystic fibrosis-related diabetes is difficult, but the glycemic index can help.
Two doctors who worked with Dr. Warren Warwick reflect on his contribution to CF care and its lasting impact.
From scheduling appointments to dealing with insurance, taking charge of your own care is a part of becoming an adult with cystic fibrosis. However, when the time came for me to take over these responsibilities, I realized more could be done to make the transition smoother.
It took a lot of self-advocacy — and a lot of medical testing — before I received a diagnosis of CFTR-related disorder. Fortunately, my parents supported me as I went from specialist to specialist and finally got my diagnosis.
From a young age, I was determined that cystic fibrosis would never stop me from pursuing my dreams in the medical field. It wasn’t until I hit a road bump in pharmacy school that I realized my CF could actually give me a unique advantage.
I learned that service dogs for diabetics can be trained to detect the scent of high or low blood sugar. Could this type of training be effective for teaching my service dog to detect when I have a bacterial infection?
Working as part of a cystic fibrosis care team gives me the opportunity to provide the type of personal care I’m passionate about — I just hope my patients understand how much we are invested in their well-being.