Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
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Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.
The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
A mother worries that her son may lose access to crucial cystic fibrosis medication if proposed health care reforms are carried out.
During this open enrollment period, you may receive calls from people trying to sell you insurance plans. Luckily, our dedicated and knowledgeable Compass case managers are available to help you research, explore and compare options.
Hearing your pharmacist say that a prescription isn't covered under your insurance plan is stressful, worrisome and frustrating. Fortunately, there are some steps you can take.
When I ran into a particularly difficult situation with my last job, the “d” word entered my lexicon for the first time: disability. While my life doesn't look like I thought it would, I have come to accept where I am and gained a new perspective on work and life.