Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
Site Search
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
When I ran into a particularly difficult situation with my last job, the “d” word entered my lexicon for the first time: disability. While my life doesn't look like I thought it would, I have come to accept where I am and gained a new perspective on work and life.
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
Learn about the 2017 health insurance landscape and get tips on preparing for open enrollment from a CF Foundation Compass expert.
Navigating insurance for the first time can be difficult, especially if you have cystic fibrosis. Luckily, there are resources out there that can help.
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.