Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
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Positive results from a study of ivacaftor (Kalydeco®) in children ages 1 to 2 were announced today.
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
Two Phase 3 clinical trials of tezacaftor (VX-661) in combination with ivacaftor (Kalydeco®) showed positive results, Vertex Pharmaceuticals announced today.
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
When your life is already jam-packed with nebulizing medications, why would you add one more?
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.