The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
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HM Insurance Group (HM) raises nearly $40,000 through sharing the emotional 65 Roses® story and selling roses at their national sales conference.
CARSTAR was recognized as a National Corporate Champion and was presented the Rising Star Award at the 16th annual Volunteer Leadership Conference in San Diego.
For the second year, Mastercard® becomes the Greater New York Chapter's top corporate sponsor thanks to two senior-level executives personally affected by cystic fibrosis who initially connected employees to the mission of the Cystic Fibrosis Foundation.
Choate Construction's 9th annual Cars & 'Q for the Cause raised over $435,400 for the Cystic Fibrosis Foundation, serving as a role model for corporations looking to integrate philanthropy into their business model.
People with cystic fibrosis continue to live longer and healthier lives, and the Patient Registry data support this general trend. To understand what this means for our community, however, it is important to understand how these numbers are calculated and what they represent.