Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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Press Release
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May 10, 2012
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5 min read
Press Release
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Jan. 30, 2015
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1 min read
CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
Press Release
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Sept. 28, 2015
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5 min read
By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Each year, hundreds of volunteers from across the country participate in advocacy events that help state and federal policymakers and decision-makers understand the complexities of living with cystic fibrosis and the importance of having access to affordable, adequate care and supporting research and drug development.
Press Release
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June 27, 2012
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3 min read
Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Drugs
Press Release
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June 20, 2012
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5 min read
Las personas con fibrosis quística y sus familias se han enfrentado a importantes cargas económicas debido a los programas acumuladores de copago. Familiarícese con estos programas y lo que implican para usted y sus seres queridos.
9 min read
People with cystic fibrosis and their families have faced significant cost burdens due to copay accumulator programs. Get caught up on these programs and what they mean for you and your loved ones.
8 min read
Press Release
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Dec. 3, 2013
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3 min read