The Cystic Fibrosis Foundation has followed the health care reform discussion closely. While the Foundation has not taken a position on any particular health reform bill, we have consistently and aggressively encouraged officials to include specific reforms that are important for the treatment of cystic fibrosis.
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Cystic Fibrosis Foundation Drug Development Model Spawns More Than 30 Promising Therapies
Protecting your children with CF, at all costs, sounds like a loving thing to do until you consider what it may cost them. To keep a balance between their health and healthy childhood development, my husband and I have learned that it takes a prudent approach with careful and creative decision making.
The Cystic Fibrosis Foundation would like to recognize and thank the following members of the CF community for providing their time, expertise, and insights to inform the content on this site.
With the opportunity to broaden our scope, we are opening up everything we do to people living with CF -- and we want to hear from you.
For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.