As a CF mom, I'm always in a state of wonder about whether the choices I'm making are the right ones for my son with CF and the rest of the family.
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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
There are many ways you can support a family with a child or children with cystic fibrosis. Educating yourself about the disease and its treatments and offering to help without being asked are some of the best ways you can show you care.
My son’s CF diagnosis created an unexpected challenge while breastfeeding him. But through practice, help from our care team, and support from the CF community, we found the perfect balance to meet his nutritional needs.