When I was younger, I thought my cystic fibrosis affected me and only me. I have begun to realize the emotional toll that CF also takes on my family and loved ones.
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Although social cues dictate that we ask others how they are feeling when they're sick, this question is a lot more complicated when you have a chronic disease like cystic fibrosis.
I got into advocacy to work for the common good of all people with cystic fibrosis. Little did I know that this work would help me in a very personal way.
The night of our first cystic fibrosis-related fundraising gala was memorable in more ways than one. Thanks to new friendships, I got the chance to honor my daughter with CF in a special way.
Now that summer is upon us, you may be planning your next vacation. Although cystic fibrosis can make things a bit more complex, these eight tips can help you or your kids avoid as many germs as possible while traveling.
Cystic fibrosis may impact your health and productivity, but life doesn't stop just because you're feeling ill. Although CF can sometimes make it difficult to maintain your responsibilities, I've learned a few tricks over the past 30-odd years to stay productively motivated and take it one step at a time.
As the parent of children with cystic fibrosis, it can be challenging to know where to turn when they experience unfamiliar health issues. Here are six things I've learned from working with our CF care team and our pediatrician to keep my kids healthy.
Having lived with cystic fibrosis for 47 years, I want to pay it forward and share the life lessons I've learned with new parents of children with CF.
Cystic fibrosis is a complex disease that affects each person living with it differently. I think it's so important for us to learn to understand each other, so I've come up with things I wish others knew about me and my specific experiences with CF.
Pulmonary function tests (PFTs) are a standard component of quarterly cystic fibrosis clinic visits, but they can often cause a great deal of stress for people with CF. Here are a few strategies that I've found helpful for reducing my own PFT anxiety.