Today, the Cystic Fibrosis Foundation announced plans to improve lung transplantation for people with CF at an Organ Summit, hosted by the White House. The event focused on new and innovative ways to improve outcomes for individuals waiting for organ transplants and to improve support for living donors.
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Piper Beatty, a two-time double-lung transplant recipient, testifies at an FDA meeting on organ transplantation.
Beth Evans, a 48-year-old with CF, is currently playing the lung transplantation “pre-wait waiting game.” She is sick enough to need new lungs, but not quite sick enough to get them just yet.
After a double-lung transplant, I realized I needed to take care of myself to be a good mother to my son.
Infection prevention and control is so important after a lung transplant, but often I am left with more questions than answers about how to protect myself.
The studies aim to improve our understanding of a common cause of lung transplant failures, a condition known as chronic lung allograft dysfunction (CLAD).
I believe my passion for science and math — and the unique perspective cystic fibrosis has given me — will help me make an impact as a pharmacist.
My lung transplant journey was long and, at times, full of uncertainty. Now that I have new lungs, I want to live my life to the fullest and honor my donor while I do.
Getting a double-lung transplant has been a life-changing journey. Along the way, I've had to deal with changes in my mental health and the struggle to keep my survivor guilt in check.
As a social worker, my career has been primarily focused on crisis intervention and psychiatric hospitalizations for those with mental illness. It wasn't until I received a double-lung transplant that I learned firsthand just how important mental health and trauma management can be.