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About the CF Foundation | Advocacy | Public Policy
Teens Lobby Congress to Raise Awareness of Cystic Fibrosis

Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease

Press Release |
| 2 min read
About the CF Foundation | Public Policy | Drug Pipeline
Statement from the Cystic Fibrosis Foundation on Senate HELP Committee’s Approval of the EXPERRT Act

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

Press Release |
| 3 min read
About the CF Foundation | Public Policy
Statement from the Cystic Fibrosis Foundation on the House Energy and Commerce Committee’s Health Subcommittee Approval of the EXPERRT Act

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

Press Release |
| 5 min read
About the CF Foundation | Public Policy | Advocacy
Statement from the Cystic Fibrosis Foundation on President Obama's Precision Medicine Initiative Event
Press Release |
| 1 min read
About the CF Foundation | Public Policy | Clinical Trials
The Cystic Fibrosis Foundation Celebrates Passage of the Ensuring Access to Clinical Trials Act of 2015

CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases

Press Release |
| 5 min read
About the CF Foundation | Public Policy | Advocacy
Cystic Fibrosis Foundation Commends U.S. Senate for Declaring May National Cystic Fibrosis Awareness Month

Foundation and Legislative Supporters Pushed for Bill

Press Release |
| 3 min read
About the CF Foundation | Public Policy | Clinical Trials
Senate Introduces Bill to Boost Participation in Clinical Trials for Rare Diseases

Bill Would Remove Financial Penalties for Participating in Research Studies

Press Release |
| 4 min read
Public Policy
Ways to Advocate
Insurance | Public Policy
What You Need to Know: Accumulators, Maximizers, and People With CF

People with cystic fibrosis and their families have faced significant cost burdens due to copay accumulator programs. Get caught up on these programs and what they mean for you and your loved ones.

8 min read