Addressing variability in newborn screening can prevent missed diagnoses and delays in early care intervention.
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News
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Sept. 29, 2022
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3 min read
More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community.
News
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June 27, 2022
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4 min read
CEO pledge is part of the Foundation’s ongoing commitment to strengthen the organization and better serve all people with CF
News
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Sept. 1, 2022
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3 min read
Orkambi® is now approved for use in children with cystic fibrosis ages 1-2 years who have two F508del mutations. This is the only modulator available to very young children with these mutations.
News
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Sept. 2, 2022
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3 min read
Revised approach to lung function reporting is shown to be more scientifically accurate and may reduce health disparities.
News
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April 2, 2024
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5 min read