Addressing variability in newborn screening can prevent missed diagnoses and delays in early care intervention.
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More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community.
Vertex’s copay assistance changes add an undue burden for people living with an already expensive, challenging lifelong disease.
A transformative leader for more than two decades, Marshall will transition to advisory role
The funding will help support research into the development of potential new modulator therapies for people with cystic fibrosis with an F508del mutation.
Funding will support a Phase 2b trial of phage therapy for chronic Pseudomonas aeruginosa lung infections.
This year’s program marked the largest in-person advocacy event in the Foundation’s history.