Hospice care helped my daughter, Desirée, through her final days.
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We’re highlighting six creators who are helping raise awareness of cystic fibrosis. By sharing parts of their life with CF on paper or on screen, they’re voicing the variety of ways that people experience the disease.
When my daughter was diagnosed with cystic fibrosis, I found it difficult to explain this disease to my parents in Spanish, and I also felt alone in my rural community. That is why I think it is important to bring CF awareness to the Hispanic community.
Living with CF means I quickly became familiar with the patient side of the health care field. My experiences in the hospital have motivated me to become the kind of nurse that listens to and advocates for their patients.
In a letter to California's Assembly Committee on Health, the Cystic Fibrosis Foundation expressed its support for AB 2180, which, if passed, would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements, as well as require covered benefits to be considered essential health benefits.
The Cystic Fibrosis Foundation joined the CDC Coalition in a letter to leaders of the House Appropriation Subcommittee on Labor, Health, Human Services, Education, and Related Agencies, urging them to include $11.581 billion for the Centers for Disease Control and Prevention in the Fiscal Year 2025 budget.