Kalydeco Marks the Latest Success of the Cystic Fibrosis Foundation’s Venture Philanthropy Model
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Jan. 31, 2012
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5 min read
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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April 25, 2012
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3 min read
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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May 10, 2012
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5 min read
CF Foundation Provided Scientific, Clinical and Significant Funding Support in Drug Development Process
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June 24, 2014
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5 min read
Press Release
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Jan. 30, 2015
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1 min read
Press Release
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May 17, 2015
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3 min read
CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
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Sept. 28, 2015
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5 min read
This medicine represents the single greatest therapeutic advancement in the history of CF, offering a treatment for the underlying cause of the disease that could eventually benefit more than 90 percent of people with CF.
Press Release
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Oct. 21, 2019
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3 min read
By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Each year, hundreds of volunteers from across the country participate in advocacy events that help state and federal policymakers and decision-makers understand the complexities of living with cystic fibrosis and the importance of having access to affordable, adequate care and supporting research and drug development.