I was prepared to experience side effects when I was vaccinated against COVID-19, and -- although they were significant to me -- I knew that it was my immune system strongly responding to the vaccine.
Site Search
When my husband got COVID-19, we had to set up strict rules and procedures to keep our adult daughter, who has cystic fibrosis, safe.
When Brady was diagnosed with CF, I felt like I'd been thrown into a river without a paddle. But then I realized my “paddle” was CF advocacy, and it could help steer our boat in the right direction.
There have never been as many new CF drugs in development as there are today. In the second plenary at NACFC, Dr. George Retsch-Bogart outlined the progress we've made, the road ahead and the changes needed to make it all possible. Read on for my key takeaways.
As Congress weighs budget appropriations, we look at long-term funding for the National Institutes of Health. We decided to sit down with the Foundation's senior vice president of research affairs to learn more about why the work being done at NIH is so important in the search for a cure for CF and other serious, rare diseases.
Last week I travelled to D.C. to serve on a panel discussing the recent developments in precision medicine. I've got to say, it was pretty neat.
With COVID-19, a year indoors -- and online -- has brought up a familiar feeling that screen time has the potential to bring us hope and laughter. On the other hand, the internet can also convince us that the sky is falling.
The hope that came with the authorization of two COVID-19 vaccines has been coupled with anxiety and frustration as I wait.
Although many believe COVID-19 vaccines will allow for a return to normal for some, unanswered questions leave me wondering what “normal” will be.
Watch a panel of experts discuss COVID-19 vaccines through the lens of cystic fibrosis.