March on the Hill brings a mix of new and familiar faces to Capitol Hill every year. The connections and stories that our advocates share with their elected officials are making lasting impressions that impact the entire CF community. And as this event has grown, so too has the cystic fibrosis story.
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When I ran into a particularly difficult situation with my last job, the “d” word entered my lexicon for the first time: disability. While my life doesn't look like I thought it would, I have come to accept where I am and gained a new perspective on work and life.
Learn about the 2017 health insurance landscape and get tips on preparing for open enrollment from a CF Foundation Compass expert.
Navigating insurance for the first time can be difficult, especially if you have cystic fibrosis. Luckily, there are resources out there that can help.
Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”
A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
A mother worries that her son may lose access to crucial cystic fibrosis medication if proposed health care reforms are carried out.
During this open enrollment period, you may receive calls from people trying to sell you insurance plans. Luckily, our dedicated and knowledgeable Compass case managers are available to help you research, explore and compare options.
Hearing your pharmacist say that a prescription isn't covered under your insurance plan is stressful, worrisome and frustrating. Fortunately, there are some steps you can take.
Sr. Vice President for Policy and Community Affairs Mary Dwight reflects on the passage of the Ensuring Access to Clinical Trials Act (EACT) and what it means for the community.