Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Drugs
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June 27, 2012
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June 20, 2012
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Dec. 3, 2013
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Even though I haven't cultured for nontuberculous mycobacteria, I was excited to learn more about the treatment for the bacteria in people with cystic fibrosis during the virtual session at the North American Cystic Fibrosis Conference.
Meagan Helmick
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Jan. 21, 2015
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Jan. 30, 2015
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July 16, 2015
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Senate Caucus will work with House Caucus to raise awareness, advance policies and support research
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April 19, 2016
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Bill Would Remove Barrier to Clinical Research for Rare Diseases by Ensuring that Clinical Trial Participants Don't Lose Critical Health Benefits
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Sept. 18, 2015
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July 15, 2008
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