Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Drugs
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Even though I haven't cultured for nontuberculous mycobacteria, I was excited to learn more about the treatment for the bacteria in people with cystic fibrosis during the virtual session at the North American Cystic Fibrosis Conference.
Meagan Helmick
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Senate Caucus will work with House Caucus to raise awareness, advance policies and support research
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Bill Would Remove Barrier to Clinical Research for Rare Diseases by Ensuring that Clinical Trial Participants Don't Lose Critical Health Benefits
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Legislation Would Remove Financial Penalties for Participating in Research Studies
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