Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
Site Search
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence