When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.
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Having trouble finding things to keep your toddler occupied during treatments for cystic fibrosis? Here are five tips that do the trick for my 3-year-old son, Major.
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
Protecting your children with CF, at all costs, sounds like a loving thing to do until you consider what it may cost them. To keep a balance between their health and healthy childhood development, my husband and I have learned that it takes a prudent approach with careful and creative decision making.
The Cystic Fibrosis Foundation would like to recognize and thank the following members of the CF community for providing their time, expertise, and insights to inform the content on this site.
With the opportunity to broaden our scope, we are opening up everything we do to people living with CF -- and we want to hear from you.
For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
The Cystic Fibrosis Foundation has an attendance policy for all Foundation events, meetings, and offices to preserve the health and well-being of all people, including people with cystic fibrosis, by reducing the risk of getting and spreading dangerous germs.
When we set out to create the Foundation's new website, there was a lot we wanted to accomplish. Our goal was a modern, visually compelling CFF.org that provides more helpful information for the millions of people who visit each year. But we wanted to do something much more, too.
As the mother of a child with CF and volunteer for the CF Foundation, I know first-hand the extraordinary things that Dr. Bob Beall has done for our community, and I am grateful for the legacy of hope that he leaves behind.