As children with cystic fibrosis transition toward greater independence at school and at home, they will also take greater responsibility in managing their disease.
Site Search
Showing 31 - 35 of 35 results
2 min read
Delayed puberty is common among young men with CF, but working with your CF care team to ensure you get good nutrition can help encourage healthy development and growth.
3 min read
To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.
Bianca Maldonado-Dequin
At this age, your child with cystic fibrosis is ready to transition from breast milk or formula to whole milk or a high-calorie supplement. Encourage independent eating. Create a consistent schedule and mealtime expectations.
6 min read
With help and support from my parents, I felt empowered to make my first big decision with my cystic fibrosis care: When to remove my G-tube.
Jaclyn Strube
Major Strube