In a letter to the Illinois General Assembly, the CF Foundation provides feedback on HB 4472 which would establish an affordability board with the goal to improve access to and affordability of care for Illinoisans.
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In a letter to the Nebraska Senate’s Committee on Health and Human Services, the CF Foundation urged legislators to amend LB 1060 to require the provision of materials to parents about the lifesaving benefits of newborn screening and the risks of opting out before parents decide to forgo this service.
In a letter to New Hampshire’s Senate Committee on Health and Human Services, the Foundation expressed its support for SB 354, which, if passed, would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements.
In a letter to the Vermont House of Representatives, the Cystic Fibrosis Foundation expressed its support for H. 766, which, if passed, would make several important reforms to the prior authorization process and would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements.
In a letter to Pennsylvania Department of Human Services, the Cystic Fibrosis Foundation expressed support for Pennsylvania’s proposal to provide multi-year continuous Medicaid coverage for children under age six, which would protect patients and families from gaps in care and promote health equity.
The Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in urging the Centers for Medicare and Medicaid Coverage to strengthen critical policies that would improve the Medicaid redetermination process.
The Cystic Fibrosis Foundation joined patient and health groups in writing a letter to House appropriators, asking they ensure the National Institute of Allergy and Infectious Diseases receives boosted funding needed to meet its critical, multi-faceted mission.
The Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in strongly urging governors and states to take additional action to protect Medicaid coverage for the children and families over the next year.
In a letter to the U.S. Department of Health and Human Services and the U.S. Department of Labor, the Foundation requested the two agencies provide guidance to health insurers across all plan types clarifying that they must follow the co-pay assistance provision included in the 2020 Notice of Benefit and Payment Parameters.
In a letter to the House Energy & Commerce Health Subcommittee, the Foundation joins a cohort of patient organizations to stress the importance of addressing antimicrobial resistance and prioritize the passage of the PASTEUR Act.