Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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Showing 11 - 20 of 28 results
Press Release
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May 10, 2012
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5 min read
Press Release
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Jan. 30, 2015
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1 min read
CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
Press Release
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Sept. 28, 2015
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5 min read
I felt unrelenting hope watching the first plenary of this year’s North American Cystic Fibrosis Conference. As I learned about progress that has been made in sickle cell disease, and how those learnings may help us develop a genetic therapy for CF, it showed me that the CF community is supporting people like me who can’t take modulators.
Ruby Steuart, MMS, PA-C
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3 min read
Press Release
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June 27, 2012
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3 min read
Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Drugs
Press Release
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June 20, 2012
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5 min read
Press Release
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Dec. 3, 2013
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3 min read
Press Release
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Jan. 21, 2015
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2 min read
Press Release
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Jan. 30, 2015
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3 min read
Press Release
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July 16, 2015
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2 min read