When my two boys with cystic fibrosis ask me about death, I don't see it as something to be feared or ignored. Rather, I view it as an opportunity to share information about CF and the truths of life in an appropriate and honest way.
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Here's my experience with that awkward moment when you have to tell that one person who has always been there for you your whole life that they need to just let go a little bit.
New data show positive results in individuals with a single F508del mutation as well as people with two copies of F508del and support continued development of triple combination therapies.
This is my story about when I met a man who showed me kindness, support, trust and compassion in a way that I had never known, and how I explained my CF to him -- on my own terms.
They say it takes a village, and this is especially true when you are a single mother of two who also happens to have cystic fibrosis. Single parenthood as a person with CF can be crazy, but being okay with asking for help can make it easier.
I knew that I needed to make a change when I began checking on home from the office and checking on work at odd hours from home.
Life -- especially when you have cystic fibrosis -- is what you make it. Here is how my CF inspired me to attend law school and helped me get to where I am today.
I've known for a while that pregnancy isn't an option for me due to complications related to my cystic fibrosis. Now that my husband and I are planning for children, here are some of the thoughts and considerations that impacted our family planning decisions.
Watching a Bruce Lee movie inspired me to live my life on my terms.
A few weeks ago, while contemplating the trip I was about to take to Washington D.C. to join my fellow advocates for the Cystic Fibrosis Foundation's tenth annual March on the Hill, I challenged myself to "think big." So I sat down in front of the computer and wrote a letter to the President of the United States.