Teams of dedicated health care professionals in a nationwide network of more than 130 Cystic Fibrosis Foundation-accredited care centers partner with people with CF and their families to provide expert care and specialized disease management.
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Men and women with CF can have biological kids, but fertility has not always been priorities of CF care. As people with CF live longer, healthier lives than before, more men and women must make crucial decisions about their reproductive health.
Although CF may have consequences for your reproductive health, it does not diminish sexual performance or the desire for intimacy. People with CF may worry about experiencing shortness of breath, coughing or hemoptysis (coughing up blood or blood-stained mucus), but these problems should not keep them from enjoying a normal, fulfilling sex life.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.