This morning, Vertex Pharmaceuticals announced the results from the Phase 3 clinical trials of ivacaftor (Kalydeco™) and lumacaftor (VX-809) in people with two copies of the F508del mutation.
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A comprehensive, updated resource to assist the cystic fibrosis community with infection prevention and control practices is now available online. “Infection Prevention and Control Guideline for Cystic Fibrosis: 2013 Update” will also be published in the August print edition of Infection Control & Hospital Epidemiology, the official journal of the Society for Healthcare Epidemiology of America.
The video of the second plenary at this year's North American Cystic Fibrosis Conference was focused on lung transplantation and is now available to watch online. Having had a lung transplant and as one of the people with CF featured in the video, this particular session had a personal meaning for me.
My mother's approach to her cystic fibrosis was matter-of-fact, allowing her personality to take center stage.
It's not a crime to projectile cough, but sometimes it feels like it is.
Check out my five favorite Instagram accounts to follow from the cystic fibrosis community.
After years of preparing my body and ensuring stability, I am excited to announce that we are pregnant! I am thankful because I believe my hard work has played a role in our success and our immense joy right now.
When I was young, I didn't think much about having cystic fibrosis. Over time, I realized how big of an influence it has on my life.
With Mother's Day just around the corner, we asked our community to tell us about the women who inspire them and take their breath away. Here are some of the responses we received.