Having cystic fibrosis interfered with many of my romantic relationships and I was hesitant to disclose it. But, then I met somebody who accepted me and my CF.
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After my partner was diagnosed with cystic fibrosis, I had to learn how to support her and keep myself from getting rundown. Over time, I have learned that doing small things, such as ordering medicines, can be enormously helpful.
A chance meeting at a CF conference 12 years ago gave me one of the most valuable gifts: my CF Mama friend group. Since then, we’ve invested time in our friendship and supported each other through the laughs and the tears.
As someone with cystic fibrosis, I struggled with the fact that I might be a burden to those who helped care for me. Things changed when I married Ramón and learned the true meaning of caregiving.
My friendship with Judy, who had cystic fibrosis, helped me see how I could accomplish my career goals despite my own chronic illness. Unfortunately, she died six years ago, but her inspiration lives on, and I know she would be proud of me.
As an adult with cystic fibrosis, I know I am blessed to be healthy right now. I find joy in spreading awareness of CF and encouraging others to follow their dreams no matter what.
The CF community supported me so much during my two double-lung transplants, so I’m eager and excited to give back. One of the ways I got involved was by becoming a mentor, which is how I formed an incredible bond with my friend, Brittani.
Living with an illness like advanced lung disease can be incredibly isolating and limiting. But I’ve found a way to connect with others and make my own adventures through online gaming.