Nationwide Effort to Instill Best Practices for Cystic Fibrosis Care is Honored for Excellence
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New Patient Data Posted Online Shows Improvements Across Care Center Network
Addressing variability in newborn screening can prevent missed diagnoses and delays in early care intervention.
The cystic fibrosis care model is evolving to support people living longer with CF and their increasingly diverse health needs. Catalyzed by the approval of Trikafta® and the COVID-19 pandemic, this adaptive and personalized care model encompasses novel ways to connect clinicians and patients.
The Cystic Fibrosis Foundation hosted a Congressional briefing on February 11 to discuss the benefits of the Foundation's model of specialized, coordinated care and its innovative strategies for drug development, and how they can serve as an example for other rare, chronic diseases.