The Cystic Fibrosis Lung Transplant Consortium Biorepository and Patient Registry, in collaboration with Cleveland Clinic, will provide critical clinical data and samples to support future research investigating complications of lung transplant.
Site Search
Showing 1 - 10 of 13 results
News
|
Dec. 22, 2009
|
2 min read
News
|
Nov. 21, 2007
|
2 min read
News
|
Oct. 4, 2006
|
2 min read
News
|
Aug. 11, 2014
|
5 min read
News
|
Aug. 12, 2021
|
4 min read
Everyone needs a break from time to time. In fact, sometimes a family trip or a getaway with friends is just what the doctor ordered. In this section, we'll discuss ways to manage your CF while traveling so that you return home as healthy as when you left.
Overseas travel can be a challenge, even for the most experienced of travelers. If you have cystic fibrosis and are considering traveling abroad, early planning can help.
Today, there are close to 40,000 people in the United States with CF due in large part to more people living longer into adulthood, signaling a shift in what it means to live with CF in the modern era.
News
|
July 28, 2022
|
4 min read
Managing cystic fibrosis can feel overwhelming at times — but we’re here to help. Learn how to navigate life with CF.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.