My partner, Jan, was a CF fighter for 50 years. She lived an amazing life and celebrated her lung transplant to the fullest. She passed away a few months ago and I'm honored to keep her fight against CF going strong.
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Living with cystic fibrosis, I owe gratitude to the friends, family, and care team members who love me, support me, and make my life easier. Join me in letting those who support you know how much you appreciate them.
Even though nobody close to me had cystic fibrosis, I decided to try to make a difference in the lives of people with CF.
After I was diagnosed with cystic fibrosis at the age of 21, I was eventually able to find a way to involve myself in the CF community by doing something I loved -- golfing. Along the way, I met some incredible people who showed me the importance of chasing the moment.
In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.
As a high school nurse, I've worked hard over the last few years to help my three students with CF navigate school safely. A welcome but unexpected change to my plans was helping one of my students get her very own service dog, Rosie.
The pandemic made me a homeschool teacher last spring. After deciding we would continue homeschooling our kids this fall, we agreed we needed to shake things up. Gone was the cluttered kitchen table where we were doing lessons before, and in its place is a “classroom” we made in our garage.
CF Knocked the Shyness Out of Me
As schools start to reopen, parents, students, and households aim to make the best decisions for those living with cystic fibrosis. Here's your guide to hearing the risks, benefits, and key factors to consider for in-person and distance learning.
Although I was disappointed that the Volunteer Leadership Conference was transformed into a virtual event this year, I know that this was the best decision to keep the cystic fibrosis community safe during the coronavirus outbreak.