Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
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When I decided to study abroad in 1974, I also decided that I would not allow CF to stop me from living my life to the fullest.
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
With the holidays fast approaching, it's time to prepare for the change of schedule in your cystic fibrosis routine.
During my five months in Denmark for a study abroad program, I not only learned more about myself and others, but I became more confident in my ability to take care of myself. Don't let CF stand in the way of experiencing that, or any other dreams.
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.