Learning that your child has cystic fibrosis can be overwhelming. You may feel sad, guilty, scared, or even angry, but you are not alone. We are here to help.
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Our federal and state advocacy efforts support our mission of ensuring that everyone with cystic fibrosis has access to high-quality, specialized care. We evaluate policies and legislation through one lens: How would this impact people with CF and their families?
Revised Law Includes Designated Funding for Rare Diseases
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Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials
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Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases
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Cystic Fibrosis Foundation Drug Development Model Spawns More Than 30 Promising Therapies
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Foundation and Legislative Supporters Pushed for Bill
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Bill Would Remove Financial Penalties for Participating in Research Studies
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Learning that your baby has cystic fibrosis may come as a shock, especially if you do not have a family history of the disease, but you are not alone.
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