Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Drugs
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Press Release
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June 27, 2012
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3 min read
Press Release
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June 20, 2012
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5 min read
I was not emotionally prepared the first time I saw my daughter in her vest. But now, I am thankful to have this device as a part of our daily routine to keep her lungs healthy.
Jamie Rudnycky
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3 min read
Press Release
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Dec. 3, 2013
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3 min read
At first, it was easy to get my son to do his cystic fibrosis treatments. But as he got older, he started to hide his medications, rather than take them. I finally learned how to get him to see the importance of taking his medications.
Lathronia Jefferson
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7 min read
In the summer months, some things require special attention for people with cystic fibrosis.
Paula Lomas, M.A.S., RN, CCRP
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4 min read
Press Release
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Jan. 21, 2015
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2 min read
Press Release
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Jan. 30, 2015
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3 min read
Press Release
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July 16, 2015
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2 min read
Senate Caucus will work with House Caucus to raise awareness, advance policies and support research
Press Release
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April 19, 2016
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5 min read